An Honest Update

This has been a tough week. Monday was a pretty good day, but I've had a really rough time since then. Usually I don't tell people much about the "bad days," but Will said that people need to see the bad side, too. I'm not always sitting in my wheelchair smiling. Some days I am physically too weak and tired and brain fogged to have facial expressions. I am sometimes too weak and tired to get out of bed and sit up. The act of simply waking up is a challenge, and I fight my body to wake up and eat and drink.

This is how I have spent most of this week.

People often say to me, "I don't know how you do it." They don't understand how I can keep up with a now three year old while spending my life sitting and lying down. People want to know what my daily life is like, how I keep up, and how my son is so healthy and happy despite having such a disabled mother to care for him all day.

I had a couple of blog posts that I wanted to write this week that would describe in better detail what good day is like, what a bad day is like, and how I manage parenting from bed. If you really want to know about the good and the bad, come back next week. As long as I'm physically able to type it all up, I'll share what an average good day is like, and what an average bad day is like.