Thursday, March 22, 2012

CHANGES: Living with Postural Orthostatic Tachycardia Syndrome

Three years ago the Dysautonomia Information Network made a POTS documentary.  I am excited to announce that the full video is now available on YouTube!

For those of you who may not know, POTS (Postural Orthostatic Tachycardia Syndrome) is one of the types of dysautonomia that I have. Symptoms and severity can vary from patient to patient, but this documentary will give you an idea of some of the challenges that those of us with POTS face. 

Enjoy the video!  If you are viewing this post in an email you will need to click over to watch.

For more information on POTS or dysautonomia, please visit  


  1. Thank you for posting this it was very insightful. Hannah thinks she saw you in the video. Did she?

  2. She did!  My picture was in there. :)

  3. Jessica @ Muthering HeightsMarch 25, 2012 at 8:32 PM

    Thank you for sharing this.  I'm interested to learn more about POTS...

  4. Hi Rachel,
    Elaine, a friend of your mom, sent me your way.  After many decades of many symptoms and many misdiagnoses, I was finally diagnosed with Hypermobility Ehlers-Danlos and POTS in February.  My daughters (10 & nearly 13) are both also affected by both HEDS and Dysautonomia.  In fact, it was the 10 year old's recent issues that finally triggered something for their pediatrician and sent me (they go in April) to the geneticist...which sent us both to the cardiologist.  I've so enjoyed the little I've read here on your blog - and I'll be back to catch up more!  


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